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Le Monde de Pia

Biarritz

Purpose of the association

Améliorer la qualité de vie de Pia atteinte du syndrome rare RNU2-2; financer du matériel adapté, des soins et thérapies spécifiques; soutenir la recherche médicale et génétique sur ce syndrome; sensibiliser le grand public et les institutions à cette maladie rare et encore peu connue

Automatically translated

Official information

RNA no.
W641015233
Founded on
5 November 2025
Last declaration
5 November 2025
Registered office
Villa Esperance, 23 RUE des Jardins, _, 64200 Biarritz

Source: National Register of Associations (French Ministry of the Interior), Open Licence.

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