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Association un Avenir pour Rylane

Pencran

Purpose of the association

Financer des stages intensifs pour le développement de Rylane en France et à l'étranger, financer le matériel médical adapté au syndrome CDKL5, organiser des déplacements liés à ses soins, sensibiliser le public à cette maladie génétique rare et récolter des fonds pour améliorer son quotidien

Automatically translated

Official information

RNA no.
W291016558
Founded on
5 September 2025
Last declaration
5 September 2025
Registered office
1 RUE des Agapanthes, _, 29800 Pencran

Source: National Register of Associations (French Ministry of the Interior), Open Licence.

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