Les Syndromes Xtraordinaires

Purpose of the association

To bring together, assist and support families affected by an X-linked neurodevelopmental disorder (NDD); to promote the exchange of information, experiences and mutual support amongst families; to raise awareness amongst the public and professionals about X-linked neurodevelopmental disorders; to support, encourage and contribute to scientific and medical research relating to X-linked neurodevelopmental disorders; to represent families in dealings with public and private institutions and health authorities; to organise any initiative, event, meeting, publication or activity related to its purpose

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