Anouk, le Sourire a la Vie

Purpose of the association

To create a chain of solidarity to support ANOUK, who has Angelman syndrome; to raise funds from private or public sources by organising events, particularly of a cultural, artistic or sporting nature; to purchase equipment and fund therapies to adapt her environment to her needs and stimulate her development; cover all expenses related to her disability; offer emotional support to parents of children with the syndrome when the diagnosis is first made; raise awareness of Angelman syndrome and its treatments, and encourage medical research into this condition; and undertake any other activities likely to contribute to the achievement of these objectives

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