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🤝 Solidarity and health

Bpan France

Fondettes

Purpose of the association

Informer, sensibiliser et faire connaître la maladie génétique rare BPAN wdr 45 auprès du corps médical, paramédical et du grand public ; promouvoir, financer la recherche scientifique et médicale sur les maladies génétiques rares et en particulier BPAN wdr 45 ; accompagner et rompre l'isolement des familles ayant un enfant polyhandicapé, et en particulier celles touchées par la maladie génétique rare BPAN wdr 45 et toutes autres actions et services

Automatically translated

Official information

RNA no.
W011005569
Founded on
25 January 2019
Last declaration
29 April 2024
Registered office
39 RUE de la Morandière, _, 37230 Fondettes

Source: National Register of Associations (French Ministry of the Interior), Open Licence.

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